I have been thinking about writing my blog for awhile, but nothing was really standing out as blogworthy so I have been quiet - until today. You all know I run and that I am training for the Philadelphia Marathon in November (and if you didn't now you do). We are about 6 weeks out right now with some of the harder runs still to come, but we are moving along. I went for a run afterwork today and this blog started to write itself so here goes! I talk alot about my running and what it means to me. I think that I have been leaving out something really huge that has been affecting me and I want to talk about it. I have mentioned before that I have ulcerative colitis, but sometimes I mention it in a way that is actually fairly dismissive for something that does effect me in a number of different ways. I think that the only people who see what it does to me is my family and a few close friends. Otherwise I sort of pretend that it doesn't exist - though as my running partner and boyfriend will tell you - it does!
I think that because for so long I ignored my symptoms and when I say I ignored it, I spend over half a year sick and didn't say anything - for reals. When I was finally diagnosed it was under terrible circumstances that I would never wish on anyone. Try having a colonoscopy when you haven't been able to eat anything and still have to do the prep and all your muscles start cramping - yeah and then do it again a month later still sick. I lost alot of weight, had no energy and could barely eat anything. And run a marathon during a flare, it will put you in the ER after. But you want what you want so you do it - no one understands the why. They think you are nuts. Most people who are sick are just that sick. But that isn't an answer it is a question about how you want to live your life.
Let's fast forward though because this isn't about that, it is about where I am now. I am living my life on the edge of being an extremely healthy person and fighting with my own shadow. To hover on that line is the most challenging thing that I have ever done. Running a 20 miler doesn't even compare - to be honest it helps my resolve. I can tell when I am on the edge of being sick and once I cross over into having a flare shit gets real fast - maybe a little pun intended. What is hardest is that for all intensive purposes I look fine for the most part.
For most sickness looks sick; for me it doesn't. I go to work with almost no one knowing what I am feeling unless I say something. My ulcerative colitis is like a wave; there are parts of the day where I feel fine, which quickly and without warning turn into severe abdominal pain, cramping and an urgency to go the bathroom that I cannot explain except that there is not much relief - though that makes it sound better then it feels. I have been on the edge of a flare for about two months and in it for four days. That doesn't sound long right? These have been the longest most uncomfortable four days. I ran 5 miles afterwork today and it was the best I felt all day, and I mean that. I still didn't feel like myself, but I felt like I was in control of my body and my mind for those 45 minutes - I felt free.
When I was running I was thinking about what I wanted to get across and I could go into details about what living with an IBD is like, but what I want to convey is more of the idea to accept each day for what it is. I know that there are many people who are much sicker then I am (maybe you are one of them); that they just keep going and face each day with hope. I simply just want to put out there part of what I face; that maybe sometimes I make it sound easy, but it isn't and there is this fire that doesn't fade.
"The way I see it, if you want the rainbow, you gotta put up with the rain." - Dolly Parton







